Archive For The “Our CKD Adventure” Category
By Lindsay | September 6, 2011
We are sitting in the waiting room at Mayo Clinic and Pete is reading Cat Fancy. It’s Biopsy Day #2. Biopsy Day #1 was a waste of time and money. The doctor at Florida Hospital did not take enough of a tissue sample and sent it to what I’m now calling a nephropathology farm, so [...]
Peter and I had to take a trip to the wonderful Mayo Clinic last week for his six week check up. The doctor was supposed to have obtained Peter’s biopsy slides, but the hospital that we had the procedure done at hasn’t been cooperative. We were both a little disappointed, because once Dr. Aslam takes a [...]
We had Pete’s doctor appointment last Thursday, and I took a half day so that I could go. I’m pretty sure that everyone knows about the Best Doctor’s report (a benefit through work, they send his medical history to a leading nephrologist who writes what he thinks Pete should do). Out of that came a diagnosis [...]
So we’ve had quite the adventure here at Florida hospital. I woke up with a cold, and have been hiding sneezing and blowing my nose here in post-op (and using crazy amounts of hand sanitizer). We started out by going to the wrong building. And now we’re in the midst of waiting five hours for [...]
In the morning, Pete will be having a kidney biopsy to check up on how things are going in there. It’s a fairly minor procedure. We have to be at the hospital at 6 am, the procedure starts at 8, he’s in recovery at 9, and we have to hang out there for a few [...]
After six patient weeks of waiting, we finally got Pete’s Best Doctor report back. It’s a little overwhelming for a few reasons. The doctor who wrote the report and answered all of our questions works at a Harvard teaching hospital. He backed up everything he said by citing 44 references. 44! And even though most [...]
“Everyone kept saying to me ‘you are so brave’ but I work for a psychiatrist and he said to me: ‘You are brave enough to have this operation, but you are not brave enough to live without your husband ‘ and that’s when I realised he was right.”
The Adventures of Pete and His Kidneys (Or, Diffuse Mesangial Proliferative Glomerulonephritis)
By Lindsay | March 11, 2010
Peter is obviously a major part of my life. With Pete come his kidneys. They have a life of their own, and enjoy making me crazy with every flare up of gout, every blood test, and every urine sample. When Peter and I started dating, he would make trips to a hospital in St. Petersburg [...]
